Through February, all the schools in the Southport Learning Partnership will be carrying out fundraising activities in aid of the Marfan Trust, a small charity that researches Marfan syndrome and supports those affected. The children of Southport chose this charity as they heard about a family that suffers from the condition.

Marfan syndrome is an inherited disorder of the body’s connective tissue which can lead to medical problems affecting the heart, eyes and skeleton, requiring treatment to prevent

serious complications. Over 18,000 people are affected by Marfan syndrome in the UK, with many more anticipated to be living with the condition undiagnosed. 1 in 3,000 population worldwide are

believed to have Marfan syndrome. Marfan syndrome is a genetic disorder. This means people are born with Marfan syndrome, however they may not notice any of the signs until much later in life. Marfan syndrome affects the eyes, skeleton, lungs and heart.

For more information visit www.marfantrust.org

What are we doing at Marshside?

On Friday 28th February children can wear MUFTI and sunglasses for the day in return for a £1 donation.  Sunglasses can be as wacky or creative as you like. This will help remind us that people with Marfan syndrome have problems with their eyes.